In the last "Caring and Sharing" we gave an account of our activities until the end of June 1996. Here is a summary of our meetings for the second half of 1996.

September 20^th First Symposium on "Rare Disorders and Orphan Drugs"

Palais du Luxembourg, Paris

September 20^th - 21^st First "Synovium" Days

Cité des Sciences et de l' Industrie, Paris

December 4^th Presence of the AFL at the Telethon in Evry.

September 16th Rh^ nes-Alpes/Lyon

The "Resources Group" met the Chairman of the County Council on the subject of the compensating allowance for third persons (ACTP). Since November 2^nd , 1992, the AFL is a member of the "Resources Group". Several associations are fighting together in order to draw the attention of the medias and the administrative authorities on the problems of the resources of the handicapped.

October 2^nd Aquitaine/Bordeaux

Meeting of diseased and physicians on the subjects:

- dermatological and rheumatological aspects in lupus

- Vascular aspects in auto-immune diseases.

October 14^th Boulogne/Rennes

Visit of a member of the World Health Organisation (WHO) and a member of the Public Health Services of the town of Rennes to the MAS. The AFL was present.

November 18^th Rh^ nes-Alpes/Lyon

Demonstration of the "Resources Group". 3,500 petitions were undersigned and handed over to the political parties in order for them to reexamine the ACTP assignment criteria or set up an overcost allowance.

September 12^th - 14^th ELEF Meeting in Pisa (Italy)

November 13^th Helios H Day

A program aiming at promoting equal chances and integration for the handicapped. French Council for the Handicapped on European matters (CFHE) in Paris.

And for the first 4 months in 1997...

March 24^th

Round Table at the MEDEC (medical exhibition) with RESO (network allowing health care to people in precarious situations) on "How to convey useful information to those whom access to health care is difficult? " in Paris.

April 3^rd

Demonstration "Our local Partners for Health and Solidarity" in the Hospital Center in Beauvais.

April 11^th

With Andar 42, an association against polyarthritis, meeting with the AGF (Assurances GJ nJ rales de France) (an insurance company) in Saint-Etienne:

- social protection of the handicapped

- advantages of the "disabled" card

- conveyance of estate

- tax regulation for "Handicap Savings" and "Survival Allowance".

April 19^th

General Meeting in Paris

Meeting of diseased with physicians. Subject matters:

- mouth ulcerations

- lupus and pregnancy

- pain and immunology

- molecular biology research for lupus

April 26^th Nord/Lille

Visceral signs of lupus and therapeutical aspects.

January 24^th European Coordination of the Organizations for Rare Disorders in Evry.

March 5^th Creation of EURORDIS (European Organization for Rare Disorders)

March 14^th - 20^th Lupus awareness week

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