LUPUS EUROPE - Register
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Name of Group (in native language)

Association Lupus Erythémateux

Name of Group (in English)

Lupus Erythematosus association

Chairperson

Bernadette Van Leeuw

Official Address & Tel. No.

Avenue des Jardins 62 bte.19
B 1030 Brussels
Belgium

Tel.: +32-2-726 51 41

E-Mail: presidente@lupus.be
URL :
www.lupus.be 

International Contact

Ioannis Kroustalis & Carola Maggiulli

Address of Contact & Tel. No.

Ioannis Kroustalis

Rue Leon Frederic 43

B-1030 Bruxelles

Mobile: +32-498 976 337

E-mail: vice-president@lupus.be

Carola Maggiulli

E-mail: Carola.MAGGIULLI@ec.europa.eu

Year Group established

1991

Number of Members

800

Population in Total

10 400 000

Population French Part

3 500 000

Aims of Group

Provide information to patients, doctors, paramedicals. Provide support to patients.

Defend patients’ interests vis-à-vis public authorities. Support medical research and raise awareness. Organize lectures and meetings between patients and doctors.

Name of Magazine & Frequency of Publication

'L.E. LIEN' 4 times a year

Activities of Group

Contact between members. Publications in Dailies and Weeklies. Participation in international conferences and colloquia.

 

 

 

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LUPUS EUROPE

 
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June 2009