ELEF - Register
Denmark

Name of Group (in native language)

SLE-gruppen, Gigtforeningens diagnosenetwork  for SLE / LED / Lupus

Name of Group (in English)

SLE-Group, The Danish Rheumatism Association

Chairperson

Lene Witte

Official Address & Tel. No.

Gigtforeningen    

Gentoftegade 118   

DK-2820 Gentofte

Denmark    

Tel.:     +45-39-77 80 00    
URL:    www.gigtforeningen.dk

International Contact

Anne Refsgaard

 

Address of Contact & Tel. No.          ELEF-Contact

Gigtforeningen                                              Kirsten Lerstrøm        

Gentoftegade 118                                           Kålundsvej 1 C

DK-2820 Gentofte                                         DK-3520 Farum

Denmark                                                         Denmark        

Tel.:     +45-39-77 80 00                               Tel.:    +45-44-99 49 99
URL:    www.gigtforeningen.dk                       Fax:    +45-44-99 40 99       

E-Mail: arefsgaard@gigtforeningen.dk             E-mail: kirsten@lerstrom.dk

Year Group established

1994

Number of Members

240

Population

5 210 000

Aims of Group

Enrol new members and supply correct information about lupus to patients, doctors, the health service and the general public.

Name of Magazine & Frequency of Publication

The Rheumatism Association announces meetings and events in the magazine “LEDsager”, where news related to Lupus is brought occasionally.

LEDsager is published bimonthly. Furthermore the SLE-Group hosts the website www.sle.dk and edits and publishes a short newsletter for its members twice a year.

Activities of Group

Member support, collection and dissemination of information, arranging informal as well as formal meetings and seminars, keeping contact to scientists and specialists working with Lupus.

 

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org

December 2007