ELEF - Register
Finland

Name of Group (in native language)

SLE ryhma

Name of Group (in English)

Finnish SLE-Group co.
The Finnish Rheumatism Association

Chairperson

Marjatta Sykkö

E-Mail : marjatta.sykko@welho.com 

Official Address & Tel. No.

co. The Finnish Rheumatism Association

Iso Roobertinkatu 20 – 22A

FIN-00120 Helsinki

Finland

 

Tel.:     +358-9 4761 55

Fax:     +358-9 642 286

E-Mail: info@reumaliitto.fi

URL:   www.reumaliitto.fi

International Contact

Jaana Hirvonen

Address of Contact & Tel. No.

Address see above

Tel.:     +358-9-47 61 56 01

Fax :    +358-9-64 22 86

E-Mail: jaana.hirvonen@reumaliitto.fi

Year Group established

1975

Number of Members

693

Population

5 255 580

Aims of Group

Monitor the situation of and activities for people suffering from SLE, take initiatives to improve the position of the group and increase awareness about SLE in Finland, promote and provide information about disease and its treatment to SLE sufferers and health professionals, facilitate sharing own experiences between SLE sufferers.

Name of Magazine & Frequency of Publication

Perhoset  (Butterflies)   twice a year

Activities of Group

Publishing leaflets and other material for instance the SLE information kit and SLE Guide, organize national and regional meetings and local support group meetings, telephone support.

 

 

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org

January 2008