LUPUS EUROPE - Register
France –Lupus France-

Name of Group (in native language)

LUPUS France

Name of Group (in English)

LUPUS France

Chairperson

Ginette Volf - Philippot

Official Address & Tel. No.

Rue de Rocroy 7

F-75010 Paris

France

Tel./ Fax: +33-1-45 26 33 27

Mobile:    +33-6-07 35 48 69

E-Mail: presidente@lupusfrance.fr

URL: www.lupusfrance.fr

International Contact

Ginette Volf - Philippot

Address of Contact & Tel. No.

See above

Year Group established

1999

Number of Members

1010

Population

61 000 000

Aims of Group

Inform sufferers about their disease, public of symptoms, bodies for social assistance about problems of disease. Raise funds for research. Prepare informative material and organise meetings.

Name of Magazine & Frequency of Publication

La Lettre de LUPUS FRANCE every 3 months

Activities of Group

Publishing newspaper articles. Providing sufferers information on Lupus through a scientific committee of doctors. Fundraising to spread information, meetings and conferences. Education of patients, families and physicians.

 

 

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September 2008