ELEF - Register
Germany

Name of Group (in native language)

Lupus Erythematodes Selbsthilfegemeinschaft e.V.

Name of Group (in English)

Lupus Erythematosus Self help Association.

Chairperson

Borgi Winkler-Rohlfing

Official Address & Tel. No.

Doeppersberg 20
42103 Wuppertal

Germany

Tel. : +49-202-496 87 97
Fax.: +49-202-496 87 98
E-Mail: lupus@rheumanet.org

URL: www.lupus.rheumanet.org

International Contact

Rudolf Hocks

Address of Contact & Tel. No.

Johannes-Luth-Strasse 33
65520 Bad Camberg
Tel.: +49-6483-80 44 77
Fax.: +49-6483-80 44 78
E-Mail: rhlupus@aol.com

Year Group established

1986

Number of Members

3.000

Population

83000000

Aims of Group

Exchange of information and experience.
Registration of and advice for patients.
Research into cause and treatment in Germany and abroad.
PR for SLE and avoidance of isolation.
Organization of individual and group care.
Support of regional groups and fundraising.

Name of Magazine & Frequency of Publication

'Der Schmetterling' ('The Butterfly') 4 times a year

Activities of Group

Meeting of lupus patients including lecturers by lupus specialists and psychologists.

Organisation of Workshops for lupus patients (about 10 per year).

Support of Research, e. g. a long term study of lupus -10 years- is completely financed by our group.

Member of a governmental commission to secure the payment of special medication for chronicle diseases.

General help in the social field.

 

 

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org 

December 2007