ELEF - Register
Hungary

Name of Group (in native language)

Magyar Lupus Egyesület

Name of Group (in English)

Hungarian Lupus Society

Chairperson

Zoltán Purgel

Official Address & Tel. No.

Kórógy u. 69.

H-6635 Szegvár

Hungary

Tel.:        +36-63-364400

E-Mail     info@lupusz.hu

URL:       www.lupusz.hu

International Contact

Krisztina Hevér

Address of Contact & Tel. No.

Baross u. 20. I/2.

H-9400 Sopron

Hungary

E-Mail:  kriszta@lupusz.hu

URL:       www.lupusz.hu

Year Group established

1993

February 1996 registered as a Non-Profit-Organisation

Number of Members

452 and 224 supporters

Population

10300000   Estimated SLE patients about 8,000-9,000 people

Aims of Group

Spread information, educate people about SLE and how to live with chronic illness, awareness, financial support, rehabilitation, establish and train in different areas where SLE patients can work with their changed health condition.

Name of Magazine & Frequency of Publication

Lupus Newsletter  (3 - 4 times a year)

2nd edition of the Lupus info booklet

Activities of Group

Meeting 4 times a year, when doctors talk openly about SLE, cultural events, close contact with other self-help groups.  Travelling and educating regional organisations.  Talk about patients rights to all.  We have our own web-site, and we can be found under the Hungarian Rheuma Organisation web-site also.

 

 

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org

February 2008