ELEF - Register
Israel


Name of Group (in native language)

Irgun Ha-lupus Be’Israel

Name of Group (in English)

Israeli Lupus Association (ILA)

Chairperson/Director

Irith Regev

Official Address & Tel. No.

P.O.Box 14103
Tel Aviv 61141

Israel


Tel.: +972-3-677-33 46
Fax: +972-3-635-44 64

E-Mail: lupus@drc.co.il
URL:
www.lupus.org.il

International Contact

Geula Paz & Mazali Irit

Address of Contact & Tel. No.

P.O.Box 9009
RamatEfal

Israel


Tel.: +972-3-535 03 76
E-Mail:
lupus@netvision.net.il

Year Group established

1985

Number of Members

900

Population

6 956 000

Aims of Group

1. To supply information about Lupus to patients, their families and professional people; to aid them in any other way.
2. To provide a social framework for Lupus patients.

3. Help promulgate information on all aspects of Lupus with the general public and the medical profession.

Name of Magazine & Frequency of Publication

" Parpron - News" every 2 month

Activities of Group

Lupus Hotline

Self aid groups - regional.

Meetings and lectures twice a year of all the members.

Library & SLE information centre: Hebrew / Translations Books, Articles, DVDs – Movies & Lector Pubication by professionals & members.

Publicise the Group’s existence.

Raise funds to enable practical help to be given to people with Lupus.

 

 

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org 

January 2007