ELEF - Register
Italy

Name of Group (in native language)

Gruppo Italiano per la lotta contro il lupus eritematoso sistemico

Name of Group (in English)

Italian SLE Group
(Italian Group for the fight against the Systemic Lupus Erythematosus)

Chairperson

Maria Teresa Tuccio

Official Address & Tel. No.

Via dei Monti Tiburtini, 558

I-00157 Roma

Italy

 

Tel.:      +39-329-103 49 85

Fax:      +39-10-42 06 92 46

E-Mail:  mariateresa@lupus-italy.org

URL:    www.lupus-italy.org

International Contact

Augusta Canzona

Address of Contact & Tel. No.

Via dei Monti Tiburtini 558
I-00157 Roma

Italy

Tel.Fax:  +39-6-451 53 40
Mobile:   +39-339-236 77 46
E-Mail: lupusroma@virgilio.it

Year Group established

1987

Number of Members

3000

Population

57121000

Aims of Group

Inform sufferers from SLE about their disease.
Inform public of SLE symptoms and treatment.
Inform bodies for social assistance about problems of disease.
Raise funds for research.
Prepare informative material and organise meetings to study disease.

Name of Magazine & Frequency of Publication

'Icaro' every 4 months

Activities of Group

Publishing newspaper articles.

Providing sufferers information on SLE through publications and a scientific committee of physicians.   

Organising scientific meetings and conferences.

Fundraising to spread information.

Education of physicians, including GPs.

 

 

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org

January 2008