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<div class=Section1>

<h1>ELEF - Register<br>
<span class=SpellE>The</span> <span class=SpellE>Netherlands</span></h1>

<div class=MsoNormal align=center style='text-align:center'>

<hr size=2 width="100%" align=center>

</div>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Name of Group (in native
language)<o:p></o:p></span></h3>

<p class=MsoNormal><span class=SpellE><span lang=EN-GB style='mso-ansi-language:
EN-GB'>Nationale</span></span><span lang=EN-GB style='mso-ansi-language:EN-GB'>
<span class=SpellE>Vereniging</span> LE <span class=SpellE>Patienten</span> <o:p></o:p></span></p>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Name of Group (in English)<o:p></o:p></span></h3>

<p class=MsoNormal><span lang=EN-GB style='mso-ansi-language:EN-GB'>National
Society LE Patients <o:p></o:p></span></p>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Chairperson<o:p></o:p></span></h3>

<p class="MsoNormal"><span lang="EN-GB">Marja Kruithof</span></p>

<h3><span class=GramE><span lang=EN-GB style='mso-ansi-language:EN-GB'>Official
Address &amp; Tel. No.</span></span><span lang=EN-GB style='mso-ansi-language:
EN-GB'><o:p></o:p></span></h3>

<p class=MsoNormal><span class=SpellE><span lang=EN-GB style='color:black;
mso-ansi-language:EN-GB'>Postbus</span></span><span lang=EN-GB
style='color:black;mso-ansi-language:EN-GB'> 4<o:p></o:p></span></p>

<p class=MsoNormal><span lang=EN-GB style='color:black;mso-ansi-language:EN-GB'>NL-3980
CA <span class=SpellE>Bunnik</span><o:p></o:p></span></p>

<p class=MsoNormal><span class="GramE"><span style="color: #000000">T</span><span lang=EN-GB style='color:black;
mso-ansi-language:EN-GB'>he</span></span><span lang=EN-GB style='color:black;
mso-ansi-language:EN-GB'> </span><st1:country-region><st1:place><span
  lang=EN-GB style='color:black;mso-ansi-language:EN-GB'>Netherlands</span></st1:place></st1:country-region><span
lang=EN-GB style='color:black;mso-ansi-language:EN-GB'><o:p></o:p></span></p>

<p class=MsoNormal><span lang=EN-GB style='color:black;mso-ansi-language:EN-GB'>Tel.:
+31-30-65 69 630<o:p></o:p></span></p>

<p class=MsoNormal><span lang=FR style='color:black;mso-ansi-language:FR'>Fax.:
+31-30-29 48 503<o:p></o:p></span></p>

<p class=MsoNormal><span class=SpellE><span lang=FR style='mso-ansi-language:
FR'>E-Mail</span></span><span lang=FR style='mso-ansi-language:FR'>: </span><a
href="mailto:info@nvle.org"><span lang=FR style='mso-ansi-language:FR'>info@nvle.org</span></a><span
lang=FR style='mso-ansi-language:FR'><o:p></o:p></span></p>

<p class=MsoNormal><span lang=FR style='mso-ansi-language:FR'>URL:<span
style='mso-spacerun:yes'>    </span></span><a href="http://www.nvle.org/"><span
lang=FR style='mso-ansi-language:FR'>www.nvle.org</span></a><span
style='mso-ansi-language:FR'> <span lang=FR><o:p></o:p></span></span></p>

<h3><span lang=FR style='mso-ansi-language:FR'>International Contact<o:p></o:p></span></h3>

<p class=MsoNormal style='mso-outline-level:1;tab-stops:0cm 43.2pt 72.0pt 85.5pt 108.0pt 144.0pt 180.0pt 216.0pt 252.0pt 288.0pt 324.0pt 360.0pt 364.5pt 396.0pt 432.0pt 468.0pt 504.0pt 540.0pt 576.0pt 612.0pt 648.0pt'><span
class=SpellE><span lang=EN-GB style='mso-ansi-language:EN-GB'>Ineke</span></span><span
lang=EN-GB style='mso-ansi-language:EN-GB'> <span class=SpellE>Boomker</span><o:p></o:p></span></p>

<h3><span class=GramE><span lang=EN-GB style='mso-ansi-language:EN-GB'>Address of
Contact &amp; Tel. No.</span></span><span lang=EN-GB style='mso-ansi-language:
EN-GB'><o:p></o:p></span></h3>

<p class=MsoNormal style='mso-outline-level:1;tab-stops:0cm 43.2pt 72.0pt 85.5pt 108.0pt 144.0pt 180.0pt 216.0pt 252.0pt 288.0pt 324.0pt 360.0pt 364.5pt 396.0pt 432.0pt 468.0pt 504.0pt 540.0pt 576.0pt 612.0pt 648.0pt'><span
lang=NL style='mso-ansi-language:NL'>Niersstraat, 12<span style='mso-tab-count:
2'>      </span><o:p></o:p></span></p>

<p class=MsoNormal style='mso-outline-level:1;tab-stops:0cm 43.2pt 72.0pt 85.5pt 108.0pt 144.0pt 180.0pt 216.0pt 252.0pt 288.0pt 324.0pt 360.0pt 364.5pt 396.0pt 432.0pt 468.0pt 504.0pt 540.0pt 576.0pt 612.0pt 648.0pt'><span
lang=NL style='mso-ansi-language:NL'>NL-5626 DW Eindhoven / Acht<span
style='mso-tab-count:1'>           </span><b style='mso-bidi-font-weight:normal'><u><o:p></o:p></u></b></span></p>

<p class=MsoNormal style='mso-outline-level:1;tab-stops:0cm 43.2pt 72.0pt 85.5pt 108.0pt 144.0pt 180.0pt 216.0pt 252.0pt 288.0pt 324.0pt 360.0pt 364.5pt 396.0pt 432.0pt 468.0pt 504.0pt 540.0pt 576.0pt 612.0pt 648.0pt'><span
lang=EN-GB style='mso-ansi-language:EN-GB'>The </span><st1:country-region><st1:place><span
  lang=EN-GB style='mso-ansi-language:EN-GB'>Netherlands</span></st1:place></st1:country-region><span
lang=EN-GB style='mso-ansi-language:EN-GB'> <o:p></o:p></span></p>

<p class=MsoNormal style='mso-outline-level:1;tab-stops:0cm 43.2pt 72.0pt 85.5pt 108.0pt 144.0pt 180.0pt 216.0pt 252.0pt 288.0pt 324.0pt 360.0pt 364.5pt 396.0pt 432.0pt 468.0pt 504.0pt 540.0pt 576.0pt 612.0pt 648.0pt'><b
style='mso-bidi-font-weight:normal'><u><span lang=EN-GB style='mso-ansi-language:
EN-GB'><o:p><span style='text-decoration:none'>&nbsp;</span></o:p></span></u></b></p>

<p class=MsoNormal style='mso-outline-level:1;tab-stops:0cm 43.2pt 72.0pt 85.5pt 108.0pt 144.0pt 180.0pt 216.0pt 252.0pt 288.0pt 324.0pt 360.0pt 364.5pt 396.0pt 432.0pt 468.0pt 504.0pt 540.0pt 576.0pt 612.0pt 648.0pt'><span
lang=IT style='mso-ansi-language:IT'>Tel :<span style='mso-spacerun:yes'> 
</span><span style='mso-tab-count:1'>      </span><span
style='mso-spacerun:yes'> </span>+31-40-262 35 09 private<span
style='mso-tab-count:1'>    </span><b style='mso-bidi-font-weight:normal'><u><o:p></o:p></u></b></span></p>

<p class=MsoNormal style='mso-outline-level:1;tab-stops:0cm 43.2pt 72.0pt 85.5pt 108.0pt 144.0pt 180.0pt 216.0pt 252.0pt 288.0pt 324.0pt 360.0pt 364.5pt 396.0pt 432.0pt 468.0pt 504.0pt 540.0pt 576.0pt 612.0pt 648.0pt'><span
lang=IT style='mso-ansi-language:IT'>E-Mail :<span style='mso-tab-count:1'>  </span>
</span><span lang=EN-GB style='mso-ansi-language:EN-GB'><a
href="mailto:sj.boomker@hetnet.nl"><span lang=IT style='mso-ansi-language:IT'>sj.boomker@hetnet.nl</span></a></span><span
lang=IT style='mso-ansi-language:IT'><o:p></o:p></span></p>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Year Group established<o:p></o:p></span></h3>

<p class=MsoNormal><span lang=EN-GB style='mso-ansi-language:EN-GB'>1980 <o:p></o:p></span></p>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Number of Members<o:p></o:p></span></h3>

<p class=MsoNormal><span lang=EN-GB style='mso-ansi-language:EN-GB'>2 500 <o:p></o:p></span></p>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Population<o:p></o:p></span></h3>

<p class=MsoNormal><span lang=EN-GB style='mso-ansi-language:EN-GB'>16 000 <span
class=SpellE>000</span> <o:p></o:p></span></p>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Aims of Group<o:p></o:p></span></h3>

<p class=MsoNormal><span lang=EN-GB style='mso-ansi-language:EN-GB'>Collect
information on all aspects of Lupus, Scleroderma and M.C.T.D. (mixed connective
tissue disease).<br>
Improve knowledge of disease for sufferers and doctors.<br>
Bring patients together and help them accept the disease.<o:p></o:p></span></p>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Name of Magazine &amp;
Frequency of Publication<o:p></o:p></span></h3>

<p class="MsoNormal"><span lang="EN-GB">NVLE Venster (NVLE Window) 4 times a 
year</span></p>

<h3><span lang=EN-GB style='mso-ansi-language:EN-GB'>Activities of Group<o:p></o:p></span></h3>

<p class=MsoNormal><span lang=EN-GB style='mso-ansi-language:EN-GB'>Bring
patients together, houseroom meetings, meetings with doctors;<br>
trying to get publicity in newspapers, radio etc. <o:p></o:p></span></p>

<p class=MsoNormal align=center style='text-align:center'><span lang=EN-GB
style='mso-ansi-language:EN-GB'><o:p>&nbsp;</o:p></span></p>

<p class=MsoNormal align=center style='text-align:center'><span lang=EN-GB
style='mso-ansi-language:EN-GB'><o:p>&nbsp;</o:p></span></p>

<p class=MsoNormal align=center style='text-align:center'><a
href="http://www.elef.rheumanet.org/register/">[ELEF Register]</a> <a
href="http://www.elef.rheumanet.org/">[ELEF <span class=SpellE>Home</span>]</a>
</p>

<p class=MsoNormal><o:p>&nbsp;</o:p></p>

<div class=MsoNormal align=center style='text-align:center'>

<hr size=2 width="100%" align=center>

</div>

<p class=MsoNormal align=center style='text-align:center'><strong><span
lang=EN-GB style='mso-ansi-language:EN-GB'>ELEF</span></strong><span
lang=EN-GB style='mso-ansi-language:EN-GB'><o:p></o:p></span></p>

<address style='text-align:center'><span lang=EN-GB style='mso-ansi-language:
EN-GB'>European Lupus <span class=SpellE>Erythematosus</span> Federation <br>
<a href="mailto:elef@rheumanet.org">elef@rheumanet.org</a> <o:p></o:p></span></address>

<p align=center style='text-align:center'>January 2008</p>

</div>

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