ELEF - Register
Portugal


Name of Group (in native language)

Associação de Doentes com Lupus

Name of Group (in English)

Association of Patients with Lupus

Chairperson

Dr. Rita Andrea

Official Address & Tel. No.

Avenida Defensores de Chaves No. 27 4. Dto

P-1000-110 Lisboa

Portugal

 

Tel.:   +351-21-330 36 40

Fax:   +351-21-314 62 16

E-Mail: associacao.lupus@clix.pt

URL:    www.lupus.saudeglobal.com

International Contact

Dr. Rita Andrea

Address of Contact & Tel. No.

As above

Year Group established

December 1992

Number of Members

2 500

Population

9 979 450

Aims of Group

Disclose information to patients, families, doctors and public.
Help patients to defend their rights and frame work with them.

Prepare informative material to teachers and other professions.
Stimulate scientific research and to collect numbers of patients in
Portugal.

Name of Magazine & Frequency of Publication

'Impaciente'  every 4 months

Activities of Group

Bring patients together; meetings with doctors; distribution of booklets; visits with support of patients and families who need it; courses for patients (for leisure and for leaming works that can be done at home); 3 flats with rooms for patients and families (2 in Lisbon and 1 in Oporto); Christmas Bazaar; helping with a small enterprise of painting tiles of a lupus patient; graphic works (the revue is done all here except the printing) kitchen work, etc.

 

 

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org 

Jasnuary 2007