ELEF - Register
Spain

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Name of Group (in native language)

Federación Española de Lupus

Name of Group (in English)

Spanish Lupus Federation

Chairperson

Blanca Rubio Heméndez

Official Address & Tel. No.

C/ Lagunillas, 25
Locales 3 y 4
E-29012 Málaga

Spain

Tel./Fax: +34-952-25 08 26
E-Mail: felupus@felupus.org
URL: www.felupus.org

International Contact

Isabel Diaz

Address of Contact & Tel. No.

As above

Year Group established

1996

Number of Members

2 057
(18 associations)

Population

43 198 000

Aims of Group

Coordinate the work of the member associations unifying criteria and actions between all of them in order to help improve patients and family conditions in the psychological, social and medical levels.

Name of Magazine & Frequency of Publication

Magazine "Lupus España " half-yearly

Activities of Group

Union and guidance between all its associations; inform and make aware the public opinion, administration and medical staff on characteristics and problems linked to the disease; promote the study of lupus in the frame of investigation; guide people or groups of people who wish to create their own association.

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org

January 2007