ELEF - Register
Switzerland

Name of Group (in native language)

Schweizerische Lupus Erythematodes Vereinigung (SLEV)

Name of Group (in English)

Swiss Lupus Erythematosus Association

Chairperson

Erika Rosch

Official Address & Tel. No.

Niesenstrasse 9
CH-3062 Worb

Switzerland

Tel.: +41-31-839 69 76
E-Mail: me.rosch@gmx.ch

URL: www.slev.ch  

International Contact

Britta Krismer

Address of Contact & Tel. No.

Bogenweg 15
CH-8620 Wetzikon
Switzerland

Tel.: +41-44-930 33 64

E-Mail: b.r.y.krismer@bluewinch.ch

Year Group established

1987

Number of Members

500

Population

6 968 000

Aims of Group

Help members to accept and understand their illness. Provide information about medical treatment, research and important rules of behaviour with the disease. Information of public about SLE. Form regional groups for personal contacts.

Name of Magazine & Frequency of Publication

" Rundbrief " Information about meetings, addresses, medical articles, letters and contributions by patients, issued four times a year.

Activities of Group

National level: Meetings with doctors various times a year. PR for SLE. Hotline for any kind of information about SLE. International contacts with other Lupus Support Groups. Regional level: Monthly meetings to provide effective support and prevent isolation.

 

Contact for Italian speaking persons:

Katia Poretti-Caravatti

Piazza da Sora

CH-6997 Sessa

Switzerland

Tel.: +41-91-608 28 27

E-Mail: katia.poretti@credit-suisse.com

 

Contact for French speaking persons:

Fabienne Mégevand

Au Village
CH-1526 Forel-sur-Lucens
 E-Mail : famegevand@econophone.ch

 

 

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ELEF

European Lupus Erythematosus Federation
elef@rheumanet.org

January 2008