ELEF - Register
United Kingdom

Name of Group (in native language)

Lupus U.K.

Name of Group (in English)

Lupus U.K.

Chairperson

Jane Dunnage

Director

Chris Maker

Official Address & Tel. No.

St James House
27-43, Eastern Road
Romford/Essex RMI 3NH

UK

Tel.: +44-1708-73 12 51
Fax: +44-1708-73 12 52
E-Mail : chris@lupusuk.org.uk

URL:      http://www.lupusuk.org.uk/

URL medical: http://www.medical.lupusuk.org.uk/

International Contact

Yvonne Norton

Address of Contact & Tel. No.

8, Legge Lane,

Coseley / West Midlands
WV14 8RQ
Tel./Fax:  +44-1902-49 82 36
E-Mail: yvonne@wmlg.freeserve.co.uk

URL:    www.westmidlandslupus.co.uk

Year Group established

1978

Number of Members

6500

Population

57 918 000

Aims of Group

Aid communication between Lupus patients. Help promulgate information on all aspects of SLE with the general public and the medical profession on symptoms and problems of Lupus. Publicise the Group's existence. Raise funds to enable practical help to be given to people with Lupus, and principally towards research.

Name of Magazine & Frequency of Publication

" News & Views " 3 times a year

Activities of Group

Organising Contacts and Regional Support Groups throughout the UK. Providing an educational and publicity programme for Lupus patients, general public and medical profession. Funding of research and patient services.

 

 

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European Lupus Erythematosus Federation
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January 2008